A kind-hearted catwalk queen from Glenmavis is using her status as a Miss Great Britain Glasgow finalist to raise funds for a charity aiming to cure the rare genetic condition her young nephew suffers from.Efia Quartey has hailed her "superhero" nephew Hudson, three, of Gartcosh, and his brave battle with Angelman Syndrome, which affects only one in every 15,000-17,000 people.It is a genetic disorder that affects the nervous system and causes severe physical and intellectual disability.The Lanarkshire Live app is available to download now.
Get all the news from your area – as well as features, entertainment, sport and the latest on Lanarkshire’s recovery from the coronavirus pandemic – straight to your fingertips, 24/7.The free download features the latest breaking news and exclusive stories, and allows you to customise your page to the sections that matter most to you.Head to the App Store and never miss a beat in Lanarkshire - iOS - Android As part of her work towards becoming queen at the Glasgow finals, 17-year-old Efia is fundraising for FAST UK (Foundation for Angelman Syndrome Therapeutics) and has thus far collected more than £500.Efia told Lanarkshire Live: "Hudson is a true superhero and we are all truly blessed to have such a strong boy in our lives."He has showed me what true determination is.
Nothing is ever too big for him to conquer and he shows of the true meaning to resilience and strength."He may not have had the easiest start in life, with doctors predicting he may never walk or talk, could suffer from seizures developmental delays, regression, eating problems and so much more, but this remarkable wee boy will one day be known for all the right reasons and I am so privileged to be on this journey with
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