Scot's mum fears daughter will die after red tape scuppers lifesaving treatment

dailyrecord.co.uk:

A desperately ill child is unable to have life-saving treatment because of NHS red tape. Freya Hunter, 14, needs to go into the Royal Hospital for Children, Glasgow, (RHCG) for a trial of a machine to help her breathing and keep her alive over winter.

But NHS Forth Valley is refusing to allow her team of nurses to travel with her to provide the complex nursing she needs.Freya has severe -cerebral palsy and has issues with respiration, but mum -Carolynne fears that without the Bipap ventilation system her daughter may not survive.The charity worker said: “Freya has a really compromised airway, she is completely -immobile and has to have everything done for her.“She has two-to-one nursing care at home 24/7.

She is non-verbal and she’s fed through her tummy and is on oxygen all the time.“She needs to have lots of medical interventions all the time in terms of nebulisers and suction to clear her airway.”Did you know you can keep up to date with the latest news by signing up to our daily newsletter?We send a morning and lunchtime newsletter covering the latest headlines every day.We also send coronavirus updates at 5pm on weekdays, and a round up of the week's must-read stories on Sunday afternoons.Signing up is simple, easy and free.You can pop your email address into the sign up box above, hit Subscribe and we'll do the rest.Alternatively, you can sign up and check out the rest of our newsletters here.Freya picked up three viruses and a chest infection last November and was so ill that in January she had to be placed on a -ventilator at the RHCG.Once off the ventilator, Freya contracted sepsis but Carolynne insisted her care needs could not be met by regular hospital staff.She said: “She was taken back to Forth Valley