Scots dad of young daughter with childhood dementia shares harrowing reality of condition
dailyrecord.co.ukA young Scots girl suffering from a ‘ Alzheimer's style’ illness has been left non-verbal as her harrowing condition continues to progress.
Sophia Scott, 11, was diagnosed with Sanfilippo Syndrome in 2015 after parents Darren, 43 and Amanda, 45, noticed she was having developmental issues.
The rare genetic condition, also known as Mucopolysaccharidosis type III (MPS III), causes fatal brain damage and is a type of childhood dementia.
Sadly the average life expectancy for children suffering from the disease is between 10 to 20-years-old, but most don't survive their teenage years.Sophia's dad Darren, from Glasgow, has opened up about the heartbreaking reality of the condition and said watching his daughter suffer is 'shattering'.Darren said his daughter's diagnosis came "like a bolt of lightening" as Sophia, who was previously fit and healthy, began to have difficulties with her speech and reading.A referral to speech therapy from the youngster's nursery, eventually led to the tests which diagnosed her terminal illness.Speaking to the Daily Record, Darren said: "This has destroyed all of us.
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