https://t.co/M8LV8SHv6r pic.twitter.com/21Ja6TOtjHHenry suffered from a genetic disorder known as Rett syndrome, which is usually present in girls and occurs when genes on the x-chromosome mutate.
The six-year-old was diagnosed was still an infant in 2017. The disorder affects cognitive and motor skills and prevents the brain from making connections after learning new abilities such as speech.
Due to the rarity of the mutation in boys, Henry’s condition provided new insights for researchers that could help others affected by Rett syndrome in the future.
On May 31, Engel tweeted that Henry had “taken a turn for the worse. His condition progressed and he’s developed dystonia: uncontrolled shaking/stiffness.
Read more on thewrap.com
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