NBC News correspondent Richard Engel shared a heartbreaking update on his son Henry’s health amid the 6-year-old’s battle with Rett syndrome.“For everyone following Henry’s story, unfortunately he’s taken a turn for the worse,” Engel, 48, tweeted on Tuesday, May 31. “His condition progressed and he’s developed dystonia: uncontrolled shaking/ stiffness.
He was in the hospital for 6 weeks, but is now home and getting love from brother Theo.”The journalist welcomed Henry in 2015 with wife Mary Forrest and son Theo arrived four years later.
The couple have been candid about their eldest child’s struggles with his rare medical condition and the research being done to find a cure.When Henry was 2 years old, Engel opened up about learning that the little one may not be able to perform daily tasks, such as walking or dressing himself, due to his disability. “It’s not just delay.
It means life long, permanent, untreatable physical and intellectual impairment,” the reporter said on Today in 2018. “Unfortunately, the more we learned about it, the worse the news got.”Symptoms of Rett syndrome usually aren’t immediately noticeable when a child is born, emerging around 6 to 18 months.
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