EXCLUSIVE: Not Going Quietly, the award-winning documentary about progressive activist Ady Barkan and his battle with ALS, will begin streaming on Hulu this Friday.Nicholas Bruckman directed the film, which won the audience award and a special jury award at the 2021 SXSW Film Festival, earned three IDA Awards nominations, and honors for Barkan at the Critics’ Choice Documentary Awards and the Cinema Eye Honors Awards.
Not Going Quietly was released theatrically by Greenwich Entertainment last August and later aired as part of the PBS series POV before it was acquired by Hulu.Barkan was diagnosed with ALS, the progressive neurodegenerative disease, at the age of 32.
He hasn’t let his declining physical condition deter him from making an impact on national politics, becoming, as Politico described him, “the most powerful activist in America.”He fought for passage of President Biden’s Build Back Better legislation, which made it through the House but failed in the Senate for lack of support from Sen.
Joe Manchin, Democrat of West Viriginia. Among other things, the bill would have provided funding for health care in residential and community settings for people like Barkan with chronic conditions that require significant aid from medical caregivers.“I was dealt a tough hand, five years ago, when I was diagnosed with ALS,” Barkan said at a Q&A for the film in Washington D.C.
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