New York USA death patient president Bill New York USA

ALS patients hope Congress can deliver access to potential therapies with bipartisan bill

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It's the fight of her life. Mayuri Saxena is 36 years old, holds a double master's degree and has lost the ability to use her body bit by bit.

She was diagnosed with ALS four years ago, and the progression of the neurodegenerative disease has been swift and relentless.

She can no longer walk, stand, use her arms or legs, swallow unassisted or speak. As a New Yorker coming of age in a post-9/11 world, she once hoped to affect change through her work in international relations.

But as a quadriplegic, she now relies on round-the-clock care for the most basic of necessities, and even a cough could prove fatal.

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