Largs, Ayrshire, spotted the first signs something was wrong, little knowing it would turn out so tragically.Now, the family, led by granny Fiona Govan, 50, are keen to raise awareness of the illness as they battle for more funding into childhood cancers with the worst survival rates.Civil servant Fiona wants a percentage of all government funding for research ring-fenced for children’s conditions.She has struggled to get details on the percentage split of research grants.One child every fortnight in the UK is diagnosed with DIPG.
All of them will die, usually within a year of diagnosis.Astronaut Neil Armstrong’s daughter died of DIPG in 1962.Since then, men have landed on the moon and diseases like smallpox have been virtually eradicated..
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