Edinburgh, has revealed the horror of having to watch two of her closest loved ones suffer.She said: “After my mum was diagnosed, I was in absolute disbelief.
The doctor asked us if we’d ever heard of MND and I just said, ‘Yes, actually, we are very familiar with it,’ as it was what Paul had died of.“My mum was diagnosed exactly three years after Paul.
She was extremely upset but more for me rather than herself. “She knew how hard it had been caring for Paul and watching his progression with MND.
She saw how difficult life was for Paul. She saw me try to feed him and she saw him relying on a ventilator to breathe. “Before Paul was diagnosed, I didn’t know much about MND but I knew it was rare.
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