cystic fibrosis patient is enjoying her best period of health for three years.Hailey Mann, 24, had been told she was looking at end of life care even though she knew there was a drug, Kaftrio, which could help her.But because the drug - a real game changer - wasn’t licensed in Europe she could only get it on compassionate grounds from drug company Vertex.However, just days after the Daily Record began to campaign on her behalf, Vertex agreed she could get the drug.Cystic fibrosis causes a build-up of thick, sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body.The deterioration in the lungs has meant the average life-span of someone with the disease is just.
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