Newborn twins branded 'lazy' actually had deadly muscle condition

dailyrecord.co.uk:

Twins who were branded as 'lazy' actually have a critical muscle condition. When Raffa and Sibby Whyman were unable to lift their heads and didn't have much movement, their parents Jenna and Steve became concerned.

Health workers allegedly assured the worried parents their tots would 'soon catch up', the Mirror reports. Jenna, 36, and Steve spend months raising concerns with medics before being told something was wrong.

One day before their first birthday Raffa and Sibby were diagnosed with Spinal Muscular Atrophy (SMA) type 1.The adorable tots would not likely live past age two if the condition was left untreated.Jenna said she first became worried when the boys showed no signs of being able to lift their heads or roll over, but was repeatedly told not to worry.As a result Raffa and Sibby lost vital time in their battle against the progressive condition, which causes muscle wasting and loss of movement.She told The Mirror: "They had a rattly chest from birth, which we now know is a sign of SMA."Each time I'd raise that they're not attempting to lift their head or roll over I was told 'don't worry, they're twins, they'll catch up in their own time."'They're boys, they're probably just lazy.'"Now they're unable to sit up and hold their heads up, while other children their age are starting to get on their feet and take their first steps."As time passed and the boys showed no sign of improvement, swimming instructor Jenna and warehouse manager Steve, from Benfleet in Essex, pushed for answers.On one occasion, Jenna said, she was branded "neurotic" as she questioned why her sons were developing at a slower rate than other children their age.After a health visitor finally agreed that something was wrong, the twins were