West Lothian man who lost grandson to rare disease will take on gruelling bike ride for charity
here.He said the charity provides “priceless” support to families who have lost a child, a tragedy he himself experienced following the death of his grandson, Anakin Forbes.Anakin was diagnosed with an extremely rare condition called congenital nephrotic syndrome - a condition that stops the kidneys from being able to retain any protein - just after his birth in 2017.The little boy spent most of his life in hospital in Glasgow and Dundee and passed away suddenly just a week before his third birthday in May last year due to complications from kidney failure.Mark (46), who is originally from Livingston, but now stays in Clackmannan, admits the charity challenge will push him to his limits.He told the Courier; “In preparation I’ve done the