Lanarkshire woman makes final push for donations to support child with rare condition

dailyrecord.co.uk:

A Cambuslang woman is set to dance the night away to raise thousands in a fundraiser for a local young girl with a rare condition.Jules Spence will compete in Step Up For Charity, a Strictly Come Dancing-esq competition where each competitor chooses a cause to fundraise for.The 45-year-old decided to represent Amy and Friends, a group formed to facilitate the support of children and families suffering from Trichothiodystrophy (TTD) after they helped support Elsie How the daughter of her friend.The Lanarkshire Live app is available to download now.

Get all the news from your area – as well as features, entertainment, sport and the latest on Lanarkshire’s recovery from the coronavirus pandemic – straight to your fingertips, 24/7.The free download features the latest breaking news and exclusive stories, and allows you to customise your page to the sections that matter most to you.Head to the App Store and never miss a beat in Lanarkshire - iOS - Android Jules said: “It was really important to me to support someone local and someone like Elsie, who people can get behind.“She is part of Amy and Friends, a charity in memory of a little girl, who had a condition similar to Elsie.“They have been great in supporting the family through a tough time.

I know the family, and it is something really lovely. I want to raise awareness for a cause close to my heart.“I want to raise around £5000.

If we can help lighten the burden for the charity and help families who may be struggling, then it will have been worth it.”The eight-year-old was diagnosed in February 2017 with TTD, one of a handful of people in Scotland to have it, and it has been a tough road for her and her family since then.Her mum Michelle How spoke on what it means to her