Family of Scots teen on end of life care desperate for him to see grandparents one last time
dailyrecord.co.ukThe family of a teenager who is receiving palliative care for a rare life-limiting disease are desperate for him to visit his grandparents in Malaysia for the final time.
Sean Tye, 15, was born with Pompe disease, a condition which causes severe muscle weakness and has left him with only muscle movement in his face and thumbs.
Sean is on full time ventilation so he can breathe and requires round the clock care from specialist nurses. The Aberdeenshire teenager is one of less than 200 people in the UK to have the condition.
Sean has only met his grandparents once apart from video calls. Dad Sam Tye, 45, is desperate to make lasting memories with his son and hopes to take him on a once in a lifetime trip with mum Yafen, and brother Aaron, 11, to visit his gran and grandad one last time.The family have been told the trip would cost £35,000 as Sean requires eight nurses to travel with him, as well as his medical equipment.Doting dad Sam, an IT worker, says doctors are confident his son will be declared fit to fly for the trip.Sam told the Record: "Sean requires 24-hour care with at least two people, and help with every single thing in life.
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