disabled daughter was “failed” by the NHS. Frustated Sarah Clarke, blasted her local health board after enduring a three year wait for her daughter, who suffers from a rare genetic disorder, to receive the care she needs.
Sofia Clarke, 14 was born with Rett Syndrome, a condition which affects the development of the brain and causes severe physical and mental disability.
Sofia, who is non-verbal and confined to a wheelchair, requires 24-hour care from mum Sarah and dad Maurice.They have developed their own system of communicating with Sofia so they are always able to keep on top of everything that she needs.However, Sarah explained over the past three years since the family moved from the Belfast Trust area to the South Eastern Trust, her.
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